PWIRD

Pregnant Women in Rheumatic Diseases

Welcome to the PWiRD study: Pregnant Women in Rheumatic Diseases, for women with a rheumatic disease.


Background

Rheumatic diseases and pregnancy

Rheumatic diseases usually manifest their first signs in young women of childbearing age. During pregnancy, the mother’s body undergoes multiple changes to accommodate the demands of the developing fetus. These physical and hormonal changes may alleviate or exacerbate symptoms of the rheumatic disease, and it is also possible that they may induce complications during conception, the gestation period, or possibly even after delivery.

During this period of 9 months and postpartum, rheumatic patients are considered high-risk in terms of maternal and fetal care. Women with rheumatic diseases used to be strongly discouraged from getting pregnant; nevertheless, current medicine fights to reverse this. Fertility is possible but complications still require close medical attention.

This project will examine pregnancy characteristics that rheumatic patients have experienced. It will focus on the impact of their rheumatic disease during pregnancy; how it affected the gestational progress of their fetus, the complications that possibly experienced during pregnancy, as well as the preparatory steps they followed before conceiving, such as the adjustments they had to make in regards to their treatment for conception and pregnancy, or difficulties they faced and attempts they had to make in order to achieve to get pregnant.


F.A.Q.

WHO CAN PARTICIPATE?

Women that were diagnosed with a rheumatic disease or presented their first symptoms before or during pregnancy are kindly requested to fill out this short questionnaire. Women that presented their first symptoms of their rheumatic disease after their last pregnancy cannot participate in the questionnaire.

WHAT IS THE PURPOSE OF THIS STUDY?

Most women with Rheumatic Diseases are diagnosed during their childbearing years. Medications taken during those years as well as the progression of the disease may interfere with fertility or gestation. This study will focus on the effects of rheumatic diseases on conception and pregnancy to analyze the different gynecological and rheumatological obstacles faced, as well as note steps of improvement in health care.

WHY AM I BEING CHOSEN?

We are surveying women with rheumatic diseases that could share and inform us about their experiences, thoughts and concerns relating to pregnancy planning, attempts and gestation. Your feedback is valuable.

WILL CONFIDENTIALITY BE ENSURED?

Anonymity is assured. Your name is not required for the questionnaire, nor other personal details that could identify you.

ARE THERE ANY RISKS OR BENEFITS?

We do not anticipate any risks from participating in this study. Participation may help raise awareness.

DO I HAVE TO TAKE PART?

No, there is no obligation on you to participate. The study is voluntary, you may withdraw at any time and share information that you feel comfortable.

WHAT DO I HAVE TO DO?

Please complete the questionnaire using the link below and above. The duration of the questionnaire is approximately 15 minutes.

WHO HAS REVIEWED THE STUDY?

This study has been approved by the Cyprus National Bioethics Committee.


Participation

The study is voluntary and anonymity is assured.
Please complete the questionnaire using the link below.
The questionnaire includes four sections and it takes approximately 15 minutes.

Contact us

For more information please contact us at:
armata.i@live.sgul.ac.cy

PROJECT TITLE: PREGNANCY EXPERIENCE OF WOMEN WITH RHEUMATIC DISEASES
INVESTIGATOR: Ilianna Armata Medical Student St. George’s, University of London at the University of Nicosia
SUPERVISOR: Dr. Joseph Joseph, Rheumatologist, Associate Professor at the University of Nicosia
PATIENT ASSOCIATION LIAISON: Marios Kouloumas, President of the Cyprus League Against Rheumatism (CypLAR)

Thank you for your participation!